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My Invisible MS

Updated: Jul 30, 2020

On this World MS Day, May 30, 2019, I feel it's important to help spread awareness not only about what Multiple Sclerosis is, but also how its effects can be widespread, and both seen and unseen.

In my MS journey, yes, I've been in and out of a wheelchair, and have had to use a wide variety of mobility aids and devices to remain upright and functional. And yet, I would say that some of the most chronic, debilitating, disruptive symptoms for me tend to be the ones that are the least visible to the outside world.

Whether the intermittent nerve pain or crushing fatigue, cognitive dysfunction, or extreme sensory processing issues and overstimulation, or the sheer volatility and unpredictability of it all -- the number and nature of the symptoms can be disruptive not only for MS patients, but also their friends, loved ones, co-workers, providers and caretakers.

This article (linked below) from the National MS Society's Momentum Magazine offers up some tips to help improve understanding and communication across all parties -- to help those currently feeling "invisible" feel more seen, heard and accepted in their MS journeys. And I hope we can all come to offer one another compassion, whether differently-abled, or able-bodied and still feeling challenged in some way on any given day. Because as the old saying goes, "Be kind, for everyone is fighting a battle that you know nothing about."

We are stronger together, powered by loving kindness. 🙏❤️

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